Monday, April 5, 2010

Grieve

You know, I heard the funniest thing today, and it wasn't the first time I have heard this.... I was talking with a person about my darling son and she said to me, "It's time to grieve for the child you thought you would have, but didn't". Hmmm..I'm not sure what to think about this, or where to go with this. How do I know what I was supposed to have? Am I to grieve when I get my 5 year old out of bed for school in the morning, and he kicks me, and tells me that he is quitting school, he hates it and that the other kids are stupid idiots....Am I to grieve because I can't take my child to the playground, or the play place at the malls, or McDonald's for that matter because my child will get too overwhelmed and physically hurt another child? Am I to grieve that I have to be with my child for 24 hours a day, 7 days a week because daddy is so hurt and confused and can't handle our 5 year old? Am I to grieve that my child ended up on the front page of the paper for physically assaulting another child, and the school department never told me this happened? Am I to grieve that my 5 year old gets suspended from kindergarten because he hurt another child, and the grandmother of that other child wants, "these kids" out of our schools? Am I to grieve that we just found out that my son has a heart defect, and other medical issues going on? Am I to grieve that we just found out he has Dyslexia...Auditory Processing Disorder...and was down graded from Asperger's to Autism? Hmmmm.....as I sit and type this, my natural instinct is to defend my son and explain to everyone that there is NOTHING to grieve here. Despite all that we have went through, my son is absolutely amazing, and I see it everyday. Some days I have to see the beauty through the fog....but it's there. I don't know what kind of child I was "supposed" to have, but the one in front of me is a child that I will celebrate. Not grieve. Frankly I find that a waste of time. My son can surf, swim, ski, ride horses, smile, run, laugh, and is probably the best human GPS this side of the Mississippi. I guess if there is anything to grieve, it is the insecurities that people have about my son and the fact that they believe he won't amount to much in life. Well, I say grieve for yourself. Call your mom, are you the person she wanted you to be? It's a crazy thing this life....we can dwell on the good or bad....grieve or rejoice.....it's all what you make of it. I would be horribly embarrassed of myself if I had to look my son in the eye one day and explain to him how I grieved over the child he never was. How sad, and tragic. He and his life are bountiful. I always say that no matter how hard this life is, I am the luckiest mom in the world. So, during this Autism Awareness month, I encourage everyone to cast all the grief, shame and doubt aside, and just simply love someone with Autism. We will all be better for it.

5 comments:

  1. This is a beautiful post. You should repost it in a couple days. It put me through anger and calmed me with your love for your son. You are completely right. There is nothing to grieve. Our children are so much joy. You know you cannot understand the joy in a special needs child unless you suffer some of the pain of raising one. I think, in that way, it makes us more complete as people. We have more depth, more love, more compassion. And we can know sheer joy in things that others would simply walk past. Our lives are richer. It is they who should grieve. They don't know love like we do.

    (Btw - still waiting for more from you...)

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  2. Thank you Karen for your very sweet words. It's so true, it's very much like a coin, you can't have the heads without the tails, joy comes with sorrow, but the sorrow can make the joy that much bigger and brighter. And I have never lived with so much compassion in life, that was untill Ben graced me with his presence. I am working on more posts...:) Thank you for your encouragement!

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  3. Wow!! What a way u have with words. What a beautiful beginning to a book!!

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  4. Kathy, thank you that is very sweet..hopefully some day soon I can get more down on paper, oh, if I had the time....:)

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  5. hi sam, this is emilye just looking at your blog

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